Community Engagement
All local communities need to be heard
The COVID-19 pandemic has seriously affected communities of color and other underserved communities. Many have had higher rates of infection and more severe cases of COVID.
We don’t know yet if that means these communities will have higher rates of Long COVID. That’s one of the reasons for us to study it.
For that, we need your input.
It’s especially important for diverse communities to be heard. That includes those in LGBTQIA+ communities and people with disabilities. We aim to represent everybody in this important research of Long COVID.
About the Long COVID Community Advisory Board
The Long COVID Community Advisory Board (CAB) was created to help inform people in the Bay Area about Long COVID. The CAB will be developing information about how local residents can participate in Long COVID studies and sharing that with the communities where those studies take place.
We’ll be updating this page regularly with links to information and educational events by and for local communities. We may also share updated information from the NIH (National Institutes of Health) RECOVER Study of Long COVID as it becomes available.
As the COVID virus mutates, new variants become dominant, and we go through seasonal surges, more and more people may develop Long COVID. We hope you will find the resources listed here useful and share them with others, as we work together to Figure Out Long COVID.
Community Advisory Board (CAB) members
The CAB evolved from the COVID Emergency Communications Grantees Network (beginning March 2020)
Umoja Health
Bay Area Community Health Advisory Council
Rafiki Coalition on Health and Wellness
Latino Task Force
Peninsula Health Care District
Chinese Community Health Resource Center
Glad Tidings Church of God in Christ
Belle Haven Action
Latino Cancer Institute
Women’s Cancer Resource Center
Rise UP Solutions
SF Women’s Cancer Network

Upcoming activities by and for local communities
Watch this space. We’ll be adding new information here periodically.
Archive of previous events
Bay Area Long COVID Town Hall
Collateral materials about the San Mateo Study of Long COVID
Our community partners are developing materials to share about the Long COVID study in San Mateo. We will post those here when they are ready.